This is just what it is like until you end up in the blue zone permanently like Whitney Dafoe or |
Keeping my family updated about my life with a constellation of "insignificant" (not to me, to the medical system) symptoms called syndromes.
Paghttps://www.omf.ngo/wp-content/uploads/2020/07/Diagnosing-and-Treating-MECFS-Handout-V2.pdfes
Thursday, July 27, 2017
Souvenirs from Slowtown - things I've learnt from having glandular fever / chronic fatigue: The zones of CFS / SEID
Souvenirs from Slowtown - things I've learnt from having glandular fever / chronic fatigue: The zones of CFS / SEID: Here is a little diagram I drew to try to explain why managing this invisible, variable illness can be so damn difficult. (I've be...
Wednesday, July 05, 2017
Lyme Crimes if you dare to look
https://www.linkedin.com/pulse/things-lyme-cryminals-said-before-1990-when-founded-aldfcom-dickson
I want to know the truth....but I am so sick - wish someone would understand it for me......... If they already knew so much about Borrelia, and had the hindsight of syphilis, how the heck did it all manage to get so covered up? Alan Steere? Weren't you the one who established that band 41 - anti-flagellen protein - was enough to define this disease in a Western Blot test? Why were the requirements added to so that so many people presenting with the clinical symptoms could be excluded from having the disease?
Click on the link to Kathleen's post and start figuring out about the charge sheets and the Lyme vaccine that back-fired and the falsified disease definitions and explain it all to me. You'd be taken more seriously than me because I have been made insignificant. Our collective suffering has been made insignificant.
Even the organisations that are set up to help us can't be trusted to provide the truth.
The doctor below will fill you in more on how ridiculous treating Lyme Disease (I mean Borreliosis of any sort including relapsing fever) with a couple of weeks of anti-biotics is. It explains how invisible these diseases are to the immune system which is how they survive and why they are so debilitating. He even mentions the mould connection.
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