Saturday, August 13, 2016

Ordeal, Stress, Bowel, Gratitude and Recovery

Gratitude because it is over and I am already recovering.  Big sleeps now.

What am I talking about?  I'd been preparing and packing and moving household things out into the garage for a couple of weeks, a bit at a time,  but when crunch time comes, there is always more left to do.  When the time comes to pass the job over to the workmen, you always wonder what they will damage that you did not get time to protect.  They usually damage something and this time was no exception from both Zero Asbestos and Anderson's Flooring.  I ran out of time to move some of the bigger things that needed protection like the TV and 27" monitor and a million power cords and leads associated with the TV and computer which were a tangled mess by the end of the second day. 

The TV was cooked in the sun, the desk was chipped by the monitor or something because the  2 Anderson's workmen moved it with too much stuff on it, and stacked other stuff on it or something.  The cornices were damaged by the asbestos crew and the vinyl was scratched moving the furniture back in from the front driveway.  The electrician woke up too late about the original position of the stove and he scratched the floor and left a pile of grindings that were not even necessary in order to make it fit.  He was the one that removed the stove just that same morning and I had done a wonderful sneak-in from the garage in order to clean off every little bit of grease in the oven recess.  Perfectly clean in there for about an hour, till he came.  You know how it goes when you move in or out or both, it is just stressful.  But what made it worse for me was that I was still having bowel and eating problems.  Bowel spasms after eating and the consequences of that meant that I needed access to the toilet much more than when I am in a retarded gut state.  In preparation for that I put up an emergency toilet in my back yard......and a few other things for when I had to vacate inside.

You can see that it is out of shape, it ended up in the bin on lawn mowing day




I'm sure I had my red dolphin torch in one of the tents but I can't find it now.

I heated up a tin of spaghetti on that stove and shared it with Jan on day 2



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Thursday, August 04, 2016

The Skhollar in my life

My son likes to write books.  He's been typing on his lap top for years even while away on holidays (eg.  Pottsville holiday weekend)  and he has funded his own publishing through Xlibris Corp.  His promotional website link is below for his first book but there are write-ups all over the Internet from Amazon to Barnes and Noble.  I'm not sure if he is still in debt because of it but the debt was worth it in his mind.  I couldn't do it!!! 

I have assumed no-one would want to read my story going by the number of hits I do not receive on any of my published stuff online.  Like this blog for instance.  So I guess you could say he got minimal encouragement from me because I assumed no-one would want to read about his life either.  He's got some issues and perhaps someone interested in personality assessment or mental illness awareness would be interested in reading it from a medical case study approach but the topic is about the world of small business where this boy of mine is somehow getting by and remaining independent of and invisible to the system that would label him and probably tell him that he is not capable of functioning in the real world.  There are times when I wish he would take the easy option and let the tax-payers keep him fed, watered and in accommodation but that is not what he wants and I respect that more than my need to know that someone will take care of him after I am gone if need be.  He has a lot of personal crises mainly involving his son but the books are not about that.  They are about how he gets on in the world of business, mostly the sale of solar systems.  The topic is not exactly my cup of tea but he is so disappointed that his own family have not been able to finish reading his first book and it will haunt him forever that other things in our life could actually be more important to us, often out of necessity rather than choice.  His grandmother is going blind from glaucoma so you can imagine what he is hoping.  She is reading three plus books herself and does not want to stop reading any of them!!!!

Despite the fact that we were not totally supportive, he went ahead with it by himself and I can be proud of that if I want to be because I am his mother and I value independent thinking and freedom to choose.

As for me and my desires for myself, I always wanted to be published but I was thinking more along the lines of an academic journal.  I wrote plenty of papers but they were all connected with my studies at Uni.  I did however see my name in print as contributor to a booklet for Women in the Bnei Baruch Kabbalah organisation but it's not something I want to be known for.  I'd like to help fellow chronic illness sufferers but they don't need any more of my kind of help.  They need Government assistance now and more research yesterday.  They need money to live on that will cover the cost of the medicines and supplements they use to try and keep themselves alive as best they can in the absence of proper medical care.

Anyway, I digress, as usual, here's my boy's site as promised plus a link to 52 pages of it.  The Kindle version is US3.99 on Amazon.  Actually there are all sorts of versions for other e-book readers too somewhere.

http://www.skhollar.com/http://www.book2look.com/book/9hy975HpEa

Stage 1 cover 2015

I AM still having a bowel attack

It started yesterday in the wee early hours.  I battled to still make it to my gastric emptying studying hoping that bowel and stomach were two different things yesterday.  I had Jan involved by driving my car back to her home in between awaiting my phone call.  I had no money to pay for parking but I had petrol in the car.

I was still having a bowel attack when the study finished.  I went to the toilet in between x-rays.  It wasn't one of those quick and violent attacks beause it is still going today.  Everything is being pushed everywhere even up my throat it feels like but my morning coffee is going downward perhaps unless I burp - not game to try.  It is a relief when it builds up enough to finally evacuate but there are so many hours of cramping in between.

I had a gastric emptying test at the same time as a bowel attack.  They don't know what happened to the rest of the radioactive egg pattie because they stopped filming after 2 hours when they were sure of their verdict supposedly but changed their mind obviously because I was told I had an hour of time to kill before the last x-ray one minute and told I could go home the next.  Funny thing that they had the man in the wheel chair ready and waiting obviously from a ward and I bet not scheduled.  They cut corners just when things had started to slow down as far as rate of emptying goes...you can see it on the graph compared to the norm.  The bottom line is though that 50% of the radioactive egg was eliminated by the end of the first hour.  I had already passed their gastric emptying study then so I could be sent home.  Not that she told me anything like that.

I'm still having a bowel attack.  I feel very uncomfortable and hopefully the next call for elimination will not happen until after my wheelie walker training (of all things I need since I am walking just fine this week - I've been packing so thank God I am fine in that department.). The physio will be here in half an hour, so goodbye.

And remember, the world I experience is a cosmic joke.  Thinking of Lynnie.

Wednesday, August 03, 2016

I'd have to agree with that

I'd have to agree with that although I have also gained some understanding from both the spoon and the bean theories.

When the spoon theory doesn't fit