He is trying to catching up on sleep
It turns out he had not slept more than 3-4 hours a night for 2 months and it is only now that he has lost his job that he is able to sleep a bit better. I knew I was getting broken sleep because of his early rises but I did not realize it was that bad for him for so long. 8 hours sleep a night would go a long way towards mental stability. I am surprised how well he is coping actually. Probably doing a Judy trick and living on adrenaline.
He may not move in tomorrow to a suburb called Brightwater in Kawana because he cannot fit in all he has to do. That exam he missed from semester 1 is scheduled for tomorrow for one thing and he did not tell me till today. He also has another appointment before the exam. Don't know what.
It seems he needs the single bed too but good riddance 'cos of the number of times Connor pee'd on it. Yes he still wets the bed and soon he will be 7. It seems he needs a trailer to move properly (including one of my desks and the TV Uncle Charlie enabled me to buy but I did get another off the curbside cleanup remember so it's OK. He nearly packed up my DVD player though so I have to be alert but I'm not really well enough to follow him around with the heart monitor beeping madly).
Keeping my family updated about my life with a constellation of "insignificant" (not to me, to the medical system) symptoms called syndromes.
Paghttps://www.omf.ngo/wp-content/uploads/2020/07/Diagnosing-and-Treating-MECFS-Handout-V2.pdfes
Tuesday, November 30, 2010
He lost his job but he is moving out Tomorrow
Yes, I have had him at home for a week and a day. That's how long it has been since he lost his job because he was "not suitable for the position". I have been very unwell with everything from glands sore to unbearable aches and I want something desperately for the pain and having him home meant more lectures and disturbed sleep.
Having said that, losing his job has not stopped him from organizing this move and looking for jobs. He has had at least 2 interviews in this last week for similar positions and he has his Centrelink stuff worked out, how much he needs to borrow from me for bond (haha) and what furniture and food he wants to take. He has also got a food voucher and is packing already. He has changed his phone number because he doesn't like it and changed his bank so he could get a debit Mastercard so he has been really busy.He also says he cannot wait to get out of this "hell hole" which I think means me and my complaints against him. I am extremely light and noise intolerant at the moment. I guess that means I drove him away which I guess at least subconcsiously is what I was trying to do. I have been very cranky with this latest relapse and today he can hear the results of my new heart monitor which I will post about separately. He will not be around long enough to hear what happens when I try to take over the things that he has been doing but I guess it will be back to frozen dinners for a while and an ever increasing mess.
I have notified the Housing Department but it seems there will be no refund because I was not actually 2 weeks in advance like I thought. I must have forgotten a payment somewhere during a brain-dead phase.
Tuesday, November 23, 2010
Big Day Out
I went to see Doc Johanna today to get my referral to the rheumatologist and she has ordered some blood tests too to provide him with information - FBE; ESR; TSH; CRP, Rh factor, CCP antibody, Mg, VitB12/folate, Fe studies, ENA, ANA whatever all of them are. I had to have a swab too for a suspected "ladies" infection and the only other thing I could fit in was getting some CFS/ME documents onto her computer for her to look at later. (If she bothers). Mum wanted me to find out what to do about Scott while I was there and I also want a disabled parking sticker but that will have to wait until next Tuesday however she warned me they were much harder to get these days and she is not likely to push it and maybe will not even pursue it at all because she wants to wait until after the rheumatologist. It annoys me she does not take me seriously enough unless there is something concrete on a specialist report.
It is the first time I have been out for a week and I was lucky enough to find a hairdresser with an appointment while I was at Golden Beach so I am less buffon except that it is also windy today so it is still a little frizzy. It is the first haircut I have had since just before you came up to visit.
I forgot to tell Mum it is what's left of her money I am using for the specialist appointments. Ideally I would love to find a sympathetic neurologist and cardiologist too.
S lost his job yesterday - "not suitable for the position". He arrived at work to find his gear packed up in a box on his desk but he still insists that Sue thinks he has wonderful ideas and thinks he is great and they left on good terms. S thinks it is mainly that financially the business is struggling but they were only paying him $170 per week for mostly a five day week but sometimes only 4 days. At one stage he said that someone told them that he went into a bridal shop and was abusive to them but he says he never went into that shop so your guess is as good as mine as to what the problem really was. I would like to find out and Mum thinks I should contact her but I doubt she will be able to breach confidentiality and I am not good at that sort of thing without suffering considerable stress. Any stress is relapse material for me. Flora next door thinks it is lack of eye contact in social situations (like her ex husband) but I could not very well tell her, that he probably does not acknowledge her properly because he does not approve of her family.
Sunday, November 14, 2010
Gympie Overnight on 9th November
Another spur of the moment thing thanks to the instant communication provided by Skype. I did not think the trip would take that much out of me but it did. Nevertheless it was so nice to see them all and it was good timing because they had just flee-bombed the house (but not the animals).
I met them at the shopping centre with their groceries and drove them home so that saved them a taxi fare and Stacey was quite happy to have the opportunity that night to put $10 though the pokies while they borrowed my car and I babysat for not much more than half an hour.
Getting back to fleas - poor Cohen is covered in bites and the story that will never be forgotten was Sasha's kitten Missy being treated for fleas by Brett only to cause severe epileptic seizures for over 24 hours and costing them 600 in vet fees. Apparently it is pretty remarkable it survived the fact that Brett had accidentally used dog flea treatment (which had a picture of a cat on the box). So Missy kept her fleas despite the toxin and the vet certainly did not include a free cat flea treatment. It is Stacey's cat, Brett's dog. And the plans are to keep the family of animals together indefinitely including Peanuts the budgie.
I was treated to a very nice smokey flavored BBQ chop. Yum!
PS. The man of the house is behaving himself and stable at my place (except he moved the furniture without asking to suit him and I made him move it back today).
Another spur of the moment thing thanks to the instant communication provided by Skype. I did not think the trip would take that much out of me but it did. Nevertheless it was so nice to see them all and it was good timing because they had just flee-bombed the house (but not the animals).
I met them at the shopping centre with their groceries and drove them home so that saved them a taxi fare and Stacey was quite happy to have the opportunity that night to put $10 though the pokies while they borrowed my car and I babysat for not much more than half an hour.
Getting back to fleas - poor Cohen is covered in bites and the story that will never be forgotten was Sasha's kitten Missy being treated for fleas by Brett only to cause severe epileptic seizures for over 24 hours and costing them 600 in vet fees. Apparently it is pretty remarkable it survived the fact that Brett had accidentally used dog flea treatment (which had a picture of a cat on the box). So Missy kept her fleas despite the toxin and the vet certainly did not include a free cat flea treatment. It is Stacey's cat, Brett's dog. And the plans are to keep the family of animals together indefinitely including Peanuts the budgie.
I was treated to a very nice smokey flavored BBQ chop. Yum!
While she was shopping, S got Cohen a brand new bubble bath and it was not too difficult to get him into the bath. He had a toy I had brought up to play with too. So I took the bath video and sometime later despite all the bubbles you see already, Cohen emptied the entire contents of the bottle into the bath and their budget does not really allow for such wastage.
PS. The man of the house is behaving himself and stable at my place (except he moved the furniture without asking to suit him and I made him move it back today).
Friday, November 05, 2010
Can I borrow your poo?
http://www.the-scientist.com/news/display/57795/
This a really interesting idea - fecal transplants.
Dec 14 Addendum:
I found this post on a forum:
http://www.drmyhill.co.uk/
and
http://www.drmyhill.co.uk/
I have just recently (3 weeks ago) undergone Faecal bacteriotherapy treatment ie use fresh live actively fermenting bugs from another human gut as referred to in the article on "Fermentation in the gut" above. I live in Australia and that is where Prof Thomas Borody is (also referred to in the above article), he runs the Centre for Digestive Diseases in Sydney. I was prepared for the treatment by taking antibiotics then underwent stool infusion daily for two weeks. My health has improved out of sight - I have had cfs for 26 years and I am the healthiest and fittest I have been for well over 15 years.
I do believe my cfs has been caused by an imbalance of gut bacteria from being on antibiotics as a child for 10 years then getting a parasite in my gut whilst in india, and it was 15 yrs before they found I had that parasite. So my gut flora was a mess - mind you it has only taken 15 yrs to work all this out. Maybe this could be your problem, an imbalance of gut bacteria.
I have also recently learnt that some of these bacteria do make nasty toxins and it is these tixons that make us very ill, I believe that is where all the toxins are coming from that cause ie brain fog, pain, depression, blocked methylation, depleted hormones, high levels of mercury etc. etc.
I also underwent Dr Kenny De Meirlier's treatment but I just couldn't get the good bacteria levels up so when I came of the antibiotics (which I felt fantastic whilst taking them) I would go down hill again. Tried his treatment twice but gave up in the end and hence I have now done the stool implant with Prof Borody. This year my health has turned around dramatically doing all these treatments for my gut flora. I walk 30-40 minutes a day now and I couldn't even dawdle 100 metres at the beginning of the year. I am now starting to live a full life again. But I am heavily supplemented and have also been on the Yasko methylation protocol for 15 months. So every little bit has helped get my health back. But I really believe it has all been caused because of the gut bacteria imbalances.
Subscribe to:
Posts (Atom)