Ordeal, Stress, Bowel, Gratitude and Recovery

Gratitude because it is over and I am already recovering.  Big sleeps now.

What am I talking about?  I'd been preparing and packing and moving household things out into the garage for a couple of weeks, a bit at a time,  but when crunch time comes, there is always more left to do.  When the time comes to pass the job over to the workmen, you always wonder what they will damage that you did not get time to protect.  They usually damage something and this time was no exception from both Zero Asbestos and Anderson's Flooring.  I ran out of time to move some of the bigger things that needed protection like the TV and 27" monitor and a million power cords and leads associated with the TV and computer which were a tangled mess by the end of the second day. 

The TV was cooked in the sun, the desk was chipped by the monitor or something because the  2 Anderson's workmen moved it with too much stuff on it, and stacked other stuff on it or something.  The cornices were damaged by the asbestos crew and the vinyl was scratched moving the furniture back in from the front driveway.  The electrician woke up too late about the original position of the stove and he scratched the floor and left a pile of grindings that were not even necessary in order to make it fit.  He was the one that removed the stove just that same morning and I had done a wonderful sneak-in from the garage in order to clean off every little bit of grease in the oven recess.  Perfectly clean in there for about an hour, till he came.  You know how it goes when you move in or out or both, it is just stressful.  But what made it worse for me was that I was still having bowel and eating problems.  Bowel spasms after eating and the consequences of that meant that I needed access to the toilet much more than when I am in a retarded gut state.  In preparation for that I put up an emergency toilet in my back yard......and a few other things for when I had to vacate inside.

You can see that it is out of shape, it ended up in the bin on lawn mowing day

I'm sure I had my red dolphin torch in one of the tents but I can't find it now.

I heated up a tin of spaghetti on that stove and shared it with Jan on day 2

This page is under construction - come back for more

The Skhollar in my life

My son likes to write books.  He's been typing on his lap top for years even while away on holidays (eg.  Pottsville holiday weekend)  and he has funded his own publishing through Xlibris Corp.  His promotional website link is below for his first book but there are write-ups all over the Internet from Amazon to Barnes and Noble.  I'm not sure if he is still in debt because of it but the debt was worth it in his mind.  I couldn't do it!!! 

I have assumed no-one would want to read my story going by the number of hits I do not receive on any of my published stuff online.  Like this blog for instance.  So I guess you could say he got minimal encouragement from me because I assumed no-one would want to read about his life either.  He's got some issues and perhaps someone interested in personality assessment or mental illness awareness would be interested in reading it from a medical case study approach but the topic is about the world of small business where this boy of mine is somehow getting by and remaining independent of and invisible to the system that would label him and probably tell him that he is not capable of functioning in the real world.  There are times when I wish he would take the easy option and let the tax-payers keep him fed, watered and in accommodation but that is not what he wants and I respect that more than my need to know that someone will take care of him after I am gone if need be.  He has a lot of personal crises mainly involving his son but the books are not about that.  They are about how he gets on in the world of business, mostly the sale of solar systems.  The topic is not exactly my cup of tea but he is so disappointed that his own family have not been able to finish reading his first book and it will haunt him forever that other things in our life could actually be more important to us, often out of necessity rather than choice.  His grandmother is going blind from glaucoma so you can imagine what he is hoping.  She is reading three plus books herself and does not want to stop reading any of them!!!!

Despite the fact that we were not totally supportive, he went ahead with it by himself and I can be proud of that if I want to be because I am his mother and I value independent thinking and freedom to choose.

As for me and my desires for myself, I always wanted to be published but I was thinking more along the lines of an academic journal.  I wrote plenty of papers but they were all connected with my studies at Uni.  I did however see my name in print as contributor to a booklet for Women in the Bnei Baruch Kabbalah organisation but it's not something I want to be known for.  I'd like to help fellow chronic illness sufferers but they don't need any more of my kind of help.  They need Government assistance now and more research yesterday.  They need money to live on that will cover the cost of the medicines and supplements they use to try and keep themselves alive as best they can in the absence of proper medical care.

Anyway, I digress, as usual, here's my boy's site as promised plus a link to 52 pages of it.  The Kindle version is US3.99 on Amazon.  Actually there are all sorts of versions for other e-book readers too somewhere.

http://www.skhollar.com/, http://www.book2look.com/book/9hy975HpEa

Stage 1 cover 2015

I AM still having a bowel attack

It started yesterday in the wee early hours.  I battled to still make it to my gastric emptying studying hoping that bowel and stomach were two different things yesterday.  I had Jan involved by driving my car back to her home in between awaiting my phone call.  I had no money to pay for parking but I had petrol in the car.

I was still having a bowel attack when the study finished.  I went to the toilet in between x-rays.  It wasn't one of those quick and violent attacks beause it is still going today.  Everything is being pushed everywhere even up my throat it feels like but my morning coffee is going downward perhaps unless I burp - not game to try.  It is a relief when it builds up enough to finally evacuate but there are so many hours of cramping in between.

I had a gastric emptying test at the same time as a bowel attack.  They don't know what happened to the rest of the radioactive egg pattie because they stopped filming after 2 hours when they were sure of their verdict supposedly but changed their mind obviously because I was told I had an hour of time to kill before the last x-ray one minute and told I could go home the next.  Funny thing that they had the man in the wheel chair ready and waiting obviously from a ward and I bet not scheduled.  They cut corners just when things had started to slow down as far as rate of emptying goes...you can see it on the graph compared to the norm.  The bottom line is though that 50% of the radioactive egg was eliminated by the end of the first hour.  I had already passed their gastric emptying study then so I could be sent home.  Not that she told me anything like that.

I'm still having a bowel attack.  I feel very uncomfortable and hopefully the next call for elimination will not happen until after my wheelie walker training (of all things I need since I am walking just fine this week - I've been packing so thank God I am fine in that department.). The physio will be here in half an hour, so goodbye.

And remember, the world I experience is a cosmic joke.  Thinking of Lynnie.

I'd have to agree with that

I'd have to agree with that although I have also gained some understanding from both the spoon and the bean theories.

When the spoon theory doesn't fit

A nice list of references for M.E

Originally created by Debbie Watton and provided by Chronic Fatigue Syndrome and Fibromyalgia NSW

Connor had a sleep over on Saturday night

His Dad was supposed to be here Sunday morning to wake up to but his car broke down at the local shops on Saturday night and he had it towed to Kin Kin where he stayed until it was fixed.  He called in on his way home on Monday afternoon.  Luckily we had already done a bit of a family outing to get fish and chips for lunch but that night Connor did not care two hoots that his Dad was not able to stay over with him.  I had given each of them a room if you call the garage I am filling up with packing, a room.  I just knew they would need their own space and Connor had already asked to use my ipad on Netflix so that he could leave his Dad to the news on TV.  He did re-emerge later on when it was just the two of us.

I can't say I was well enough to get involved with him at such a late hour so he did the TV and I did the computer.  He chose to watch a series called Red vs Blue which seems be a skit on online gaming.  It was a war game and the humour was black, very black.  I was amazed at how much he loved it and laughed.  Surely you would have to be quite an intelligent 12 year old to be watching this I thought to myself but that has not prevented the family putting him on Ritalin.  It must be a Ritalin epidemic with Cohen on it too.  Yes, he has been on it for a while my son now tells me but.  Cohen is very adult about justifying why he is on it too.  I actually asked him to remember to try and remember himself, his true self, even if others are "wanting you to change".  A one liner like that is not bound to make such impact but compared to Cohen he does not need to be on Ritalin, however Connor thinks it will help him lose weight.  He sure has packed it on over the last 12 months so I can no longer blame the change of diet when he was living with his other Nana for so long.  He eats too much!  And he is fussy about what he eats.  Although he eyed off the Tamarilo until I told him it was a tree tomato. The last lot of seeds went mouldy in the moist blotting paper come glad bag set up I had seen on the Internet or something so I had asked him to leave me some if he chose to eat it.  It didn't get eaten, only the apple did (and I love Apple right now of the OS X kind).  I had manderins, kiwi fruit and passionfruit but none of those got eaten.  Scott loves apples too.  I only ever like them stewed, too hard to digest for me. I was a bit upset that he did not want my crock pot version of savoury mince. He was actually eating it when he asked me what "this" was, asking if it was pineapple.  I told him it was Paw Paw (great for digestive enzymes) and that is when he announced that he does not like Paw Paw and that was the end of Dinner for him.

S had a frozen Cannelloni dinner and gave him that but he complained that he was still hungry half an hour later and that's when he settled for a packet of noodles even though he does not like them.  I told him to make it himself.  I'd done my bit. I could only eat a little myself, in fact most of the stuff I've cooked lately has ended up in freezer bags.  This gastroparesis without being diagnosed is trying to kill me though malnutrition.  As soon as I try to eat nutritionally dense with veggies and stuff, it causes payback.  I'm down to one meal a day. But my body has been in starvation mode for at least a year now.  One meat pattie and one egg yolk was what I considered a safe meal during that year.  It certainly isn't a big meal.  When gut allows, I fortify that now with greens even if it is just dandelions out of the lawn or sprigs of parsley I grow and even more frequently your Salad Burnett Mum, just in case it is the only meal I can stomach for the day.

Anyway, on his way back home, my son was happy to take my mushroom paw paw mince home for tea that night.

Caloundra Seafood Market

Essential viewing for MS patients - drug reaction warning

Warning from Thomas Greer

Please send this to MS patient you may know. Make sure they see the last slide on Neuro-herxheimer's-like reactions from medications . Patients should work with their doctors and titrate their dosing schedule by starting low dose and also taking a steroid like prednisone or dexmethasone. (Short term)

The medications of which he speaks presumably are worming agents bought over the counter, anti-parasitics etc.  I have heard of people getting more help from their local vet than anywhere else. Please view the video for info about brain herxing from medication.

Published on 28 May 2016

Dr. Alan MacDonald (via live video link from Florida) Chronic Borreliosis and Chronic Seronegative Lyme Disease ­ DNA Probes Solve a Diagnostic Conundrum
Dr Alan MacDonald's recent work finding Nematode worms in Multiple sclerosis MS patients spinal fluid and also finding Borrelia ( Lyme Disease) in the worms. London Lecture May 15 2016

Recent discovery confirmed by state-of-the-art Molecular Beacon DNA probes.

The examination of autopsied brain tissues from patients who died of serious neurological conditions has revealed that many tick-borne infections, such as Lyme disease, go undiagnosed and untreated. Board-certified pathologist, Alan B. MacDonald, MD, says his research shows "tick infections are not easily detected with routine tests, nor are they easily cured with short courses of antibiotics."

MacDonald will present his findings Thursday on Capitol Hill, in the Rayburn House Office Building, at a forum to explore the scientific, economic, and policy challenges posed by the epidemic of Lyme disease and associated tick-borne illnesses.

MacDonald found three Borrelia pathogens, including B. burgdorferi the causative agent of Lyme disease, thriving inside parasitic nematode worms, worm eggs or larvae in the brain tissue of nineteen deceased patients. These microscopic worms are endosymbionts, meaning the Borrelia bacteria dwell inside the worms. A tick bite delivers the nematode into the human body.

"Both the worms and the Borrelia pathogens can cause devastating brain damage," said MacDonald. "Current tests, like the ELISA and Western blot, do not adequately detect the presence of Borrelia bacteria." MacDonald says his discovery also shows "while patients are wrongly declared free of Lyme and other tick-borne infections, in reality, too often they contract serious neurodegenerative diseases which can kill them."

The Rocky Mountain Multiple Sclerosis Center Tissue Bank provided MacDonald with ten specimens from deceased MS patients; all ten specimens showed evidence of Borrelia infected nematodes. Infected worms were also found in five tissue specimens from patients who succumbed to the highly malignant brain tumor Glioblastoma multiforme, the same cancer which took the life of Senator Edward Kennedy (D-MA). Ironically, in 1993, Senator Kennedy chaired a hearing of the Labor and Human Resources committee titled: Lyme disease: A Diagnostic and Treatment Dilemma. Finally, four specimens from patients who died from Lewy Body dementia, the same illness which afflicted comedian Robin Williams, also showed the presence of infected nematodes.

MacDonald's work breaks new ground while building on previous studies. In 1984, Lyme pioneer Willy Burgdorfer, Ph.D. wrote of finding nematodes in tick guts. In 2014, University of New Haven researcher Eva Sapi, Ph.D., examined the guts of ticks gathered in southern Connecticut and found 22% of the nymphs and 30% of adult Ixodes ticks carried nematodes in their systems.

MacDonald identified the infected nematodes using a technique known as FISH: Fluorescent In Situ Hybridization which involves using molecular beacon DNA probes. FISH identifies pieces of Borrelia's genetic material which fluoresce under the microscope with a 100% DNA match. Dr. MacDonald, a fellow of the Academy of American Pathologists, conducts his research through the Dr. Paul Duray Research Fellowship Endowment Inc.

Source: http://www.prnewswire.com/news-releas...

Read also: Could Alzheimer’s Stem From Infections? It Makes Sense, Experts Say http://www.nytimes.com/2016/05/26/hea...

Read also:
Glioblastoma Linked to Lyme Disease http://www.drdarvish.com/glioblastoma...

See more video's and information about Lyme Disease
here on Lyme Channel: http://bit.ly/1VRWk2j

Bifney Frayne1 week ago

Unbelievable! I figured there was an MS foundation of some sort. Yup. $44m spent last year. No search results for MacDonald or nematode. I did see the names of some of my least favorite politicians and lots of way to spend money 'treating' the ailment. Through most of my life I've had the highest regard for scientists but over the last half decade that has nearly vanished but for a handful of people and Dr. MacDonald is certainly one of them. In a better world the guy would get one of the highest prizes in medicine. In our world he'll be lucky to keep his licence to practice.

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Denise Puckett3 weeks ago

Dr. Alan MacDonald THANK YOU 2016... My Goodness 60 something years after the paper By: Dr. Innes, SCD, PHD., M.R.C.V. S. No one in Florida will help.

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Brendan Tnias1 week ago

Probably the reason that there was no apparent follow up about the nematode vectors for other human pathogens was an enthusiastic and ongoing biological [and chemical] cryptic bioweapon development program probably largely clearinghoused through the NIH as restructured under the DoD via the Eisenhower appointed Nelson Rockefeller; and the Russian Dollbioweapon consisting of one vector, perhaps a tick, discharging an assortment of varied pathological stealth microbialsdesigned to incapacitate a target population with an array of symptoms such as would stymie the medical establishment'sability to diagnose. Ticks whose bite injects a Russian doll medley of mycoplasmas viruses bacteria and worms/nematodes that carry bacteria that harbor viruses and mycoplasma. What a marvelous thing to unleash upon America in the shadow ofthe NYC metropolitan area. Then lie and deny. Whom can we than for this?

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Free children's book about Ticks

Kaitlyn had been an elementary music teacher, working with children every day. When she got too sick to work, she stayed at home and wrote her first novel called “Elements.” Now, because of her struggle with Lyme disease, Kaitlyn has written a children’s book called “Once Upon a Lyme” to bring Lyme awareness to children across the world, and has created a blog space that helps other sufferers stay positive and hopeful for curative treatment. 

 Reference article: Huffington Post


Once Upon a Lyme - the book itself online

Very Pretty Animated Gifs

iMac running OS X El Capitan

Wireless Logitech Keyboard and  (heavy) Mouse

You don't want to hear about Vivesection: but listen anyway

The blackest of All Crimes (when you are trained to do evil as opposed to choosing to do evil, never thought about it like that before Tom Regan and Mr Ghandi)

Part One

Part Two

It starts small

Please don't allow your children to be cruel to animals.  It is not something they grow out of!  Train up your child in the way of Oneness. And when he is old, he will not depart from it.

Yesterday

Yesterday I was as bright as a button.  I was even able to get something done for my son.  I looked and acted and walked normally.  Today I can barely stay awake and my gut is burning.  Already had a nap but it did not do a thing.  It is very hard to focus on what I am trying to do and I mostly give up, sit and stare until I go back to bed.....I suppose that is what is next.  I should order some online groceries or else I will have no milk tomorrow but I just can't do it now.  Glad we got that phonecall in yesterday my sister because I wouldn't be doing that today.

I tried to set up messages on the house phone but something is not right and I was in the dream world when someone tried to get me.  I don't think it was the ANZ bank again.  My brain heard someone yelling but I suppose it was someone leaving a message but it did not record it so I have no idea what it was.  Anyway, that is where I am at with the phone.  It is better for me if I can get it to record a message silently if that was an option.  I can't remember.  At least I had a go yesterday.  It could actually be working.  It is just that today, I am not well enough to care even though I did it so that I didn't have to hang up on the ANZ bank calls 3 times a day.  They hang up if they get a message machine and do not leave a message.  I changed the message but I forgotto stop the recording soon enough after I finished which actually makes it a long recording that has to finish before you can leave a message of your own.

It is good to have a son

I love this view

We got on pretty well together while he was staying here. At times the extra noise of the TV going got to me and we had to watch that Milo didn't pee out of excitement to see him every time he walked in the door but in general it was good to have time together. I love him you know. He does pretty well with all that he has stacked up against him so it is obvious that he is intelligent enough to compensate. His verbal IQ was 120 when I was studying child development and remedial teaching and had access to the dinky di tests. But like a younger me, he is still trying to be what the world wants him to be rather than who he really is. I know how hard that is and how stressful but his intentions are good and hopefully one day he can let that go and replace it with being authentic while still being able to love himself. My wish for him anyway.

Meal times were better when he was around but Milo had more reasons to bark and I can't say I enjoy her frequent barking. I had a nice break one day when S took her to the beach. As an aside about Milo, she has been accepted into the Pets For Life program so it will not be long before she will get regular weekly walks with a volunteer. Jan is a volunteer herself and I considered volunteering for it in the past but now I am grateful to have the program available for me.

S likes to make sure things are in order before he leaves me these days which is a pleasant change and much appreciated.  He has concern for his mother, too much at times when he talks about putting me in an old people's home.... so the safe thing for me to do is fill in that EPO form putting my sister in charge. 

S always forgets to do something but not on purpose.  This time it was the sofa bed.  The sofa bed got me a doozy in pay back when I ended up doing it myself.  Anything that involves straining does.  It is a bugger of a thing to turn back into a sofa especially with tennis elbow.

I got the kitchen curtains washed while S was able to get them down and put them back up again and on the day that he thought he would not be back because he was leaving to go fishing in Kin Kin surrounds, he really got stuck into what needed to be done.  He did the dishes (he did them a lot while here, but he made big kitchen messes so just as well he did lol), got the remaining chokos off the vine and put a lot of palm tree droppings in the bin for me without me even asking and they have horrible thorns a mile long!  I caught him in the act on camera.  I really appreciate this boy of mine when he is about to leave.  That sounds ...........the way it should :)