Blood Test Results

Everything else was OK she said except for an elevated CCrap or whatever it said down below in a previous post so now she has ordered:

dsDNA blood test.

Half an hour to go before he leaves with his car load.  Don't sit on the lounge chair though, because he stuck the laminate under there (while he has the mattress) for some firmness before the cushions and it breaks every time you sit on it.  I'm too tired to deal with it.

Addendum:
CRP = C-Reactive Protein = 7

http://www.drkaslow.com/html/c-reactive_protein.html

dsDNA test is for Lupus. Will get it done Monday.

Son Moves Out and More Blackouts

Just had another 3 hour blackout this time.  So the phones and Internet have been out and it is affecting half the shops in Golden Beach including the new supermarket.  It may go out again so I will make this brief.  He was at the beach last night, fell asleep there and came home when it started to rain at about 4am.  The lights were back on by then but they went off before 8am again.

I am absolutely so sick, shaking, wobbly, heart racing, aching, head inside noises so loud I can't hear Scott when he speaks even though I normally can with out aids, and worried because he keeps packing stuff of mine as soon as lie down.  Just little things to him - like my sheets - the newest ones ofcourse.  I know I cannot possibly keep up with his craftiness and I know my cane table is in the car and if I get it back it will be because I remember to ask once again.  He has taken the mattress off the sofa bed because he cannot take the inner spring bed in his car.

I am supposed to go to the doc later and I bet they are behind because they would have been without power too.  Maybe I can lie in a spare doc room to wait????  I am not getting better anyway...yet.  I had to help Flora with no candles and boiling water on gas bottles for me so generally excess activity and excess heart rate.

Goodbye S

Blackout

It is his last night living here except for one thing,  he is not here and it is 3.30am.  We had a blackout which lasted for hours and I have no idea what happened but it was only very local.  During the time in candlelight I thought it was a good time to chat but he did not get the message across that he did not want to talk because the only verbal clue I had was a conversation beginning with "I know what you're doing" said in a very accusatory manner.  So the next ten minutes was spent with him lecturing me about this deliberate assassination of him and my trying to defend myself.  Finally he said that he was looking forward to just sitting there in the peace and quiet so that I realized that he had totally failed to convey that message at the beginning of the conversation.  As soon as I got the message, we did just sit quietly.  In fact he fell asleep. 

An hour or more later he woke up to candlelight.  I gave him a portable light for his bedroom and I found him sitting and examining his face in the mirror and he said "I have to get out of here.  Look what it is doing to my face/forehead.  I am going for a drive".  I have not seen him since.  He cannot be at his new house because he has not even got the key yet and the new arrangements are that he meets Brent tomorrow afternoon after work.

The lights are back on - I woke up to them.  And I can just hear his car pulling in so all is well - I was just about to phone. Phew!

He is trying to catching up on sleep

It turns out he had not slept more than 3-4 hours a night for 2 months and it is only now that he has lost his job that he is able to sleep a bit better.  I knew I was getting broken sleep because of his early rises but I did not realize it was that bad for him for so long.  8 hours sleep a night would go a long way towards mental stability.  I am surprised how well he is coping actually.  Probably doing a Judy trick and living on adrenaline.

He may not move in tomorrow to a suburb called Brightwater in Kawana because he cannot fit in all he has to do.  That exam he missed from semester 1 is scheduled for tomorrow for one thing and he did not tell me till today.  He also has another appointment before the exam.  Don't know what. 

It seems he needs the single bed too but good riddance 'cos of the number of times Connor pee'd on it.  Yes he still wets the bed and soon he will be 7.  It seems he needs a trailer to move properly (including one of my desks and the TV Uncle Charlie enabled me to buy but I did get another off the curbside cleanup remember so it's OK.  He nearly packed up my DVD player though so I have to be alert but I'm not really well enough to follow him around with the heart monitor beeping madly).

He lost his job but he is moving out Tomorrow

Yes, I have had him at home for a week and a day.  That's how long it has been since he lost his job because he was "not suitable for the position".  I have been very unwell with everything from glands sore to unbearable aches and I want something desperately for the pain and having him home meant more lectures and disturbed sleep.

Having said that, losing his job has not stopped him from organizing this move and looking for jobs.  He has had at least 2 interviews in this last week for similar positions and he has his Centrelink stuff worked out, how much he needs to borrow from me for bond (haha) and what furniture and food he wants to take.  He has also got a food voucher and is packing already.  He has changed his phone number because he doesn't like it and changed his bank so he could get a debit Mastercard so he has been really busy.He also says he cannot wait to get out of this "hell hole" which I think means me and my complaints against him.  I am extremely light and noise intolerant at the moment.  I guess that means I drove him away which I guess at least subconcsiously is what I was trying to do.  I have been very cranky with this latest relapse and today he can hear the results of my new heart monitor which I will post about separately.  He will not be around long enough to hear what happens when I try to take over the things that he has been doing but I guess it will be back to frozen dinners for a while and an ever increasing mess. 

I have notified the Housing Department but it seems there will be no refund because I was not actually 2 weeks in advance like I thought.  I must have forgotten a payment somewhere during a brain-dead phase.

Big Day Out 

I went to see Doc Johanna today to get my referral to the rheumatologist and she has ordered some blood tests too to provide him with information - FBE; ESR; TSH; CRP, Rh factor, CCP antibody, Mg, VitB12/folate, Fe studies, ENA, ANA whatever all of them are.  I had to have a swab too for a suspected "ladies" infection and the only other thing I could fit in was getting some CFS/ME documents onto her computer for her to look at later. (If she bothers).  Mum wanted me to find out what to do about Scott while I was there and I also want a disabled parking sticker but that will have to wait until next Tuesday however she warned me they were much harder to get these days and she is not likely to push it and maybe will not even pursue it at all because she wants to wait until after the rheumatologist.  It annoys me she does not take me seriously enough unless there is something concrete on a specialist report.

It is the first time I have been out for a week and I was lucky enough to find a hairdresser with an appointment while I was at Golden Beach so I am less buffon except that it is also windy today so it is still a little frizzy.  It is the first haircut I have had since just before you came up to visit.

I forgot to tell Mum it is what's left of her money I am using for the specialist appointments.  Ideally I would love to find a sympathetic neurologist and cardiologist too.

S lost his job yesterday - "not suitable for the position".  He arrived at work to find his gear packed up in a box on his desk but he still insists that Sue thinks he has wonderful ideas and thinks he is great and they left on good terms.  S thinks it is mainly that financially the business is struggling but they were only paying him $170 per week for mostly a five day week but sometimes only 4 days.  At one stage he said that someone told them that he went into a bridal shop and was abusive to them but he says he never went into that shop so your guess is as good as mine as to what the problem really was.  I would like to find out and Mum thinks I should contact her but I doubt she will be able to breach confidentiality and I am not good at that sort of thing without suffering considerable stress.  Any stress is relapse material for me.  Flora next door thinks it is lack of eye contact in social situations (like her ex husband) but I could not very well tell her, that he probably does not acknowledge her properly because he does not approve of her family.

I wondered if I needed a new heart.

http://www.cfids-cab.org/MESA/CFS_Dist.htm

Gympie Overnight on 9th November

Another spur of the moment thing thanks to the instant communication provided by Skype.  I did not think the trip would take that much out of me but it did.  Nevertheless it was so nice to see them all and it was good timing because they had just flee-bombed the house (but not the animals).

I met them at the shopping centre with their groceries and drove them home so that saved them a taxi fare and Stacey was quite happy to have the opportunity that night to put $10 though the pokies while they borrowed my car and I babysat for not much more than half an hour.

Getting back to fleas - poor Cohen is covered in bites and the story that will never be forgotten was Sasha's kitten Missy being treated for fleas by Brett only to cause severe epileptic seizures for over 24 hours and costing them 600 in vet fees.  Apparently it is pretty remarkable it survived the fact that Brett had accidentally used dog flea treatment (which had a picture of a cat on the box). So Missy kept her fleas despite the toxin and the vet certainly did not include a free cat flea treatment. It is Stacey's cat, Brett's dog. And the plans are to keep the family of animals together indefinitely including Peanuts the budgie.

I was treated to a very nice smokey flavored BBQ chop.  Yum!

 

While she was shopping, S got Cohen a brand new bubble bath and it was not too difficult to get him into the bath.  He had a toy I had brought up to play with too.  So I took the bath video and sometime later despite all the bubbles you see already, Cohen emptied the entire contents of the bottle into the bath and their budget does not really allow for such wastage.

PS. The man of the house is behaving himself and stable at my place (except he moved the furniture without asking to suit him and I made him move it back today).

Can I borrow your poo?

http://www.the-scientist.com/news/display/57795/

This a really interesting idea - fecal transplants.

Dec 14 Addendum: 

I found this post on a forum:

http://www.drmyhill.co.uk/wiki/Fibromyalgia
and
http://www.drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS#Change_the_bugs_in_the_gut


I have just recently (3 weeks ago) undergone Faecal bacteriotherapy treatment ie use fresh live actively fermenting bugs from another human gut as referred to in the article on "Fermentation in the gut" above. I live in Australia and that is where Prof Thomas Borody is (also referred to in the above article), he runs the Centre for Digestive Diseases in Sydney. I was prepared for the treatment by taking antibiotics then underwent stool infusion daily for two weeks. My health has improved out of sight - I have had cfs for 26 years and I am the healthiest and fittest I have been for well over 15 years.
I do believe my cfs has been caused by an imbalance of gut bacteria from being on antibiotics as a child for 10 years then getting a parasite in my gut whilst in india, and it was 15 yrs before they found I had that parasite. So my gut flora was a mess - mind you it has only taken 15 yrs to work all this out. Maybe this could be your problem, an imbalance of gut bacteria.

I have also recently learnt that some of these bacteria do make nasty toxins and it is these tixons that make us very ill, I believe that is where all the toxins are coming from that cause ie brain fog, pain, depression, blocked methylation, depleted hormones, high levels of mercury etc. etc.

I also underwent Dr Kenny De Meirlier's treatment but I just couldn't get the good bacteria levels up so when I came of the antibiotics (which I felt fantastic whilst taking them) I would go down hill again. Tried his treatment twice but gave up in the end and hence I have now done the stool implant with Prof Borody. This year my health has turned around dramatically doing all these treatments for my gut flora. I walk 30-40 minutes a day now and I couldn't even dawdle 100 metres at the beginning of the year. I am now starting to live a full life again. But I am heavily supplemented and have also been on the Yasko methylation protocol for 15 months. So every little bit has helped get my health back. But I really believe it has all been caused because of the gut bacteria imbalances.

October so far.

We've had a lot of rain lately or just plain overcast after a few days of half sun.  The holiday makers didn't get as much rain as we are getting now.  I don't mind so much because it was starting to get steamy until this deluge came.  It is just as well I called off the camping for Thursday till now and it is a real pity for all those with tickets to the Caloundra Music Festival.  We have Connor this weekend too but dad has actually been taking him places and tonight they went to see the movie Guardians of Legends: The Owls of Ga Hoole - an animation. 

But I think dad is stressing too much internally after a week of work for the first time in over a year (except for a few days strawberry picking and one day for Men at Work).  He says he is loving it but I can that he was struggling with being organized and tending to get into a panic by Friday and yet I have helped out around here by cooking tea and doing washing.  Today he is well and truly being distracted by his head stuff and he is talking out loud to himself a lot and not hearing me even when I have eye contact.  And I have been getting a lot of arrogant lectures which has nothing to do with his state of mind really, he seems to always think I do things wrong and he is the only one who makes good decisions.  I do resent being advised by my son on how to run my life or how I should be grateful for any man's attention rather than rebel against being owned (or some similar meaning).  Whatever he thinks I am doing wrong is apparently why I have no man in my life but he disapproves of my attitude when I say that I don't want any of the ones I've met thank you.  It is funny how he has changed his tune about Rob.  All of a sudden, after telling him that he wanted him to not come to this house, he is now telling me that I should have been grateful to have him.  Of course this is not just about Rob, Barry or Pat that I have cast aside - I suppose it is about him too, because I have not made it easy for him to take things over - that I am fighting against it constantly.  It is a wearisome battle because he plays hard and refuses to hear another point of view but his own and he goes ahead and does things without my knowledge. 

He really risked alienating Flora next door from me by firstly telling her to keep the dog from pooing in our side of the front yard, and next he told her he wanted her to stop feeding the magpies.  She was a bit upset about the dog thing but luckily she is not holding it against me.  She only stopped feeding the magpies because she was getting a bit worried after the stories of swooping magpies and he was not rude and he explained his reasons for the sake of the magpies.  She is one who knows how embarrassing her own kids behavior can be so she does not hold what he does against me - but I hope he does not tell her the real reason why he won't let Connor play with her grandkids - that her family is beneath him - even I find it very hurtful when he says my life is as low as low and that I am not even at surface level.  Maybe he is turning into being like his father was with abusive attacks on my person.  I was talking to a long-time acquaintance recently who said her schizophrenic husband was super intelligent but extremely verbally abusive and she had to leave and believe me this woman is tough and not easily intimidated and could throw a punch if you got on her wrong side.

Not sure what is happening with the relationship between B and S.  They live as a family but some Facebook stuff between S and a girlfriend suggested she lost another girlfriend because she slept with the father of the girlfriend's kids - but when? And B put up a pic on Facebook that he had photoshopped of her with a "cock" in her mouth and a slogan that is not really glorifying a mother of your child.  But B still follows the rules of the house in relation to bringing home the bacon and looking after the child or going shopping.  And I have never figured out if there was a third option of an affordable place to live, whether he would take it or whether he really would not like to see S completely out of his life or whether he wants simply to be around the child as a father no matter what else.  Obviously he has chosen S over living with his Dad.

B has been merrily engaged with his computer and Internet and we have that in common so we sometimes get into a bit of collaboration which is nice.  He points me in the right direction when he can.  As for the child, apparently he used the potty for the first time - a bit slow at 2 half. 

And me - I'd be fine if I could move my spine without causing headaches which can get really bad.  Hanging out the washing is dangerous with my arms up.  It can have me reaching for the Codeine in no time.  It's been about 2 months but at least I can sleep more frequently now without the pressure of my head/neck against the pillow causing me headaches.  I do not feel flu-like or ill but I have low-level muscular aches at the moment which is a totally different kind of pain than the spine thing.  I have tried some anti-inflammatory for a few days but my gut reflux/burning could not handle them.  Fish oil alone is just not enough.

Remote Desktop for Windows

It has to be enabled on windows before you can even find it - even on an EEEPC.  It can be used to operate your work computer from home if the work computer has a permanent Internet address and it runs one of the professional versions of XP or newer but it is also useful for a home network if you are stuck in bed and want to access something on the "big" computer in the other room.

And because I have put in some additional security, in case I forget I have the antidote to the lockout instruction in case I am locked out of my own computer because of a breach of the security rules put in place.  And I quote : To manually unlock an account you must logon as another administrator user (preferably one without remote desktop access). Then go to Start - Programs - Administrative Tools - Computer Management - Local Users and Groups. Click on the individual user and uncheck the "account is disabled" check box. You may then log on as that user. 

References:
http://www.mobydisk.com/techres/securing_remote_desktop.html

http://www.cryer.co.uk/resources/remote_control/remote_desktop_connection.htm

Axis Job

He got the job and starts on Monday, listing and selling businesses. http://www.axisbusinessbrokerage.com.au/

Business Broker?

He is going for an interview for the above position as I speak.  No comment.

XMRV virus and chronic fatigue syndrome

It started with a US study that suggested a possible cause for chronic fatigue syndrome, namely the XMRV virus. http://sacfs.asn.au/news/2009/10/10_12_xmrv_in_the_news.htm Patients, assuming that an antiviral would soon be developed, began to hope for a cure. For me, because my symptoms are often "flu-like", I could easily identify with the idea that a virus was the causal link, especially an autoimmune related virus. However, there is no longer any reason to pin our hopes on the identification of this virus because since the US study, there have been 3 further studies which have not found significant positive results for XRMV in chronic fatigue syndrome patients:

• http://sacfs.asn.au/news/2010/01/01_12_xmrv_results_in_uk.htm

• http://sacfs.asn.au/news/2010/02/02_19_xmrv_results_retrovirology.htm

• http://sacfs.asn.au/news/2010/03/03_01_xmrv_results_bmj.htm

Couple go from Down Under to up yonder on Brontë mission - Screen captures from the video

taken from http://www.yorkshirepost.co.uk/video/Couple-go-from-Down-Under.6324250.jp

Published Date: 27 May 2010
By Andrew Robinson

A COUPLE have travelled thousands of miles from their sheep farm in Australia to see at first hand their connections to a world-famous Yorkshire family.

Davina and John Greenwood, from Melbourne, visited Dewsbury Minster this week where 200 years ago a distant ancestor, the Rev John Buckworth, appointed Patrick Brontë as curate.

Memorial to Rev John Buckworth

[My addition: Davina said that the Rev John Buckworth married Rachael Halliley - so our family connection begat children of a Minister of the church]

Mrs Greenwood is a distant relative of Patrick Brontë's brother William, who lived in Ireland and whose descendants have ended up in the United States, New Zealand, Australia, England and Scotland.


After a short stint at Dewsbury Patrick Brontë moved to Haworth where the rugged Yorkshire landscape inspired his daughters to pen the novels that became literary classics.

Mr Buckworth married the eldest daughter of local mill owner John Halliley, from whom Australian-born John Greenwood gets his middle name, Halliley.

Several generations of Hallileys in Australia can now trace their family tree back to people living in West Yorkshire in the early 1800s and before.

Last year Dewsbury Minster – a parish church in the 1800s – celebrated the 200th anniversary of Patrick Brontë's appointment as curate.

The Greenwoods were helped in their pilgrimage by Brontë enthusiast Imelda Marsden, 64, from Mirfield, who pointed out all the local connections.

As well as the Haworth connection, there are many other places in Yorkshire with links to one or other of the famous sisters.

Charlotte Brontë's lifelong friend Mary Taylor lived at Red House, Gomersal, which is now a museum.

The Greenwoods also toured the graveyard at Dewsbury Minster, where a number of Mr Greenwood's ancestors are buried, and took in Haworth and the Dales.

Page 1 of 1

* Last Updated: 27 May 2010 10:21 AM
* Source: n/a
* Location: Yorkshire

Crow Mothers Kitten - Amazing

Rainy Day Collection of his Facebook Sayings

July 12 I jumped to conclusions and came to this.

Correlation: Is the belief of a social etiquette being of particular popularity attaining a spectrum of public interest being placed into a formulated value.

Not sure whether I'm right or not, or ever will know.
...
But now I think im up to the bit of how they killed and then T rammed Levern and Shirly.

Don’t sweat it. I’m seeing both sides of the plot.

Say What!

July 15 Don' know what's worse that or clay pigons ;)

July 21 Ever seen a crowd of Women holding there fist's in the air screaming " I 'am the greatest " ----

July 28 Haven't I had a Barry Crocker!!

May 10 Stuff this 27 years trying to kill somethin, then beat the livin piss out of it for gettin a lil sic. hears to being 30.

If I delete my soul goes to myspace any way!! or so it is written.

 

Skyping Brett and Cohen on Father's Day 2010

Update: He has his own Skype for his mobile now - search for brettfrizzell

Happy Father's Day.  Luckily I found Brett on gmail chat today so finally, finally, finally I found out what Skype account he is using and it is Stacey's.  honky_noodle@hotmail.com so if you add that to your Skype contacts you may be lucky enough to see Cohen online and have a chat like I did today for the first time.

Sasha's kitten (Sasha was once Scott's cat from the Tripcony days)

Brett had my Skype broadcast on bigscreen TV

Hello Nanoo - I just had my head shaved

Video into private houses means seeing nudey rudey

I guess we will see Connor today sometime but lately Scott doesn't think he can offer Connor much and I do not think he spends enough time and effort with him these days. I've got something little for Connor to give Scott if he turns up and Brett got a bottle of Whiskey, a Dad t-shirt and something else from Cohen so he was very fortunate (thanks to Stacey). Scott just got abusive with me simply because I asked him if he wanted to see a photo of Sasha's kitten.  How dare I bring up the past to his mind (deliberately to hurt him - "I know what you are doing" he said - I have no idea what he is talking about).  There is one thing for sure, Scott will not be phoning his father for Father's Day.

Swinburne Exams

I hope today is more successful for S than Tuesday when he drove to the stadium in Brisbane for his exam but did not sit the exam.  He got really mixed up between his diary and computer calendar entry and he had the details for the wrong subject.  He had studied and was prepared for statistics and fronted up to find he was to sit an accounting exam (or was it vice versa?).  Instead of sitting the exam he did not expect he came home.  I guess he was thrown into a spin.  He surely has been unstable in other ways lately.  But it was going to be one of those stressful weeks whether he admitted it or not because he also had his Coast Guard Radio Exam on Monday night.  Also he has had trouble sleeping and he has confronted me again with demands for control over the household here.  It was interesting to see a show on Oprah with Doctor Oz about OCD - obsessive compulsive disorder - and find out that the intense fear and anxiety generated within when one is not in control of the situation is the main cause of suffering.  S (typically) demanded that I turn off the show on TV even after I had headphones on and he could not hear anything.  He cannot bear hearing anything about mental illness.  Anyway the show taught me that fearing germs or repeated outward rituals are not the only signs of OCD.  Ritualistic thoughts/prayers can take place internally for the sufferer in an effort to diffuse a frightening situation.  Also most of these intensely fearful situations are based on irrational thoughts not reality.  One woman had to prepare all her own food because she was convinced she would risk being poisoned if she accepted food from elsewhere.  In therapy she was given something not prepared by her (not under her control) and she was panic stricken because she was being encouraged not to vomit it up.

Maybe this sense of having to take control is what happened with S on Tuesday with his refusal to sit the exam because it was no longer on his terms- not his expectation.  I was out when he came home that day but he had already made arrangements for a stat dec which was necessary for him to be able to resit the exam and, as far as he is concerned, everything is under control again.  He has sorted it out. 

Today he left with confidence for the second exam.  He is happy that he already knows exactly where the building is after the Tuesday debacle.

Tuesday night was not so easy on me though.  He was confronting me as if I was the problem, as usual, and he was yelling out in his room about things that I could not hear and I was really scared he was going to crack and do something.  I don't know what - but when he gets desperate like that, I often get frightened.  Maybe it is because of the past.  The only thing I could do rather than continue with his attempts to bend me into some agreement about letting him take control was to go to bed and I lay in that bed with my heart pumping fast hearing him rave on and hoping he would not come in.  I was really scared until things quietened down.